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Together We Can Make A Difference
For Those Affected By Sarcomas!

SPAEN member groups

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Please find our member organisations listed below. It gives you a sense of SPAEN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organisations and initiatives we can achieve more.

  1. Australia: Sock it to Sarcoma
  2. Austria: GIST Support Österreich
  3. Belgium: Cum Cura
  4. Bulgaria: GIST and STS Alliance for Patients - Bulgaria
  5. Curacao: Synovial Sarcoma Research Foundation
  6. Finland: Finnish GIST Patient Network
  7. France: Info Sarcomes
  8. France: SOS Desmoide France
  9. Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
  10. Germany: SOS-Desmoid
  11. Germany: SMARCB1 e.V.
  12. Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület
  13. India: Friends of Max GIST
  14. India: SPANDAN (part of V Care)
  15. Israel: Israeli GIST Patients Organisation
  16. Italy: A.I.G. Associazione Italiana GIST
  17. Italy: Italian Desmoid Foundation
  18. Italy: Trust Paola Gonzato-Rete Sarcoma Onlus
  19. Italy: Orchestra per la Vita Onlus
  20. Kenya: Henzo Kenya
  21. Macedonia: GIST Patient Group Macedonia
  22. Netherlands: Patient Platform Sarcomen
  23. Netherlands: Chordoma Foundation Europe
  24. Norway: Sarkomer Norway
  25. Poland: Stow. Pomocy Chorym Na GIST
  26. Poland: Stow. Pomocy Chorym Na Miesaki "SARCOMA"
  27. Romania: HomeCare Association
  28. South America: Alianza GIST
  29. South Africa: Campaigning for Cancer
  30. Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
  32. Spain: ASARGA - Associacion Sarcomas of Galicia
  33. Sweden: GIST Sverige
  34. Sweden: Sarkomföreningen
  35. Switzerland: Swiss GIST Group
  36. Switzerland: Swiss Sarcoma
  37. Turkey: Genç Birikim Derneği & Youth Accumulation Association
  38. UK: GIST Cancer UK and PAWS GIST
  39. UK: Bone Cancer Research Trust
  40. UK: Guy Francis Bone Cancer Research Fund
  41. UK: Sarcoma UK
  42. UK: Desmoid Fibromatosis UK Patients & Caregivers
  43. UK: EHE Rare Cancer Charity
  44. USA: Chondrosarcoma Foundation
  45. USA: Chordoma Foundation
  46. USA: Desmoid Tumour Research Foundation
  47. USA: GSI - GIST Support International
  48. USA: LeiomyoSarcoma Support & Direct Research Foundation
  49. USA: Make IT Better Agents - pediatric osteosarcoma nonprofit
  50. USA: National Leiomyosarcoma Foundation
  51. USA: The Liddy Shriver Sarcoma Initiative
  52. USA: The Life Raft Group
  53. USA: Sarcoma Alliance
  54. USA: Sarcoma Coalition
  55. USA: Sarcoma Foundation of America