It’s with great sadness that we have to announce the passing of our dear friend, colleague in the SPAEN Board of Directors and a great patient advocate Dr. Nikhil Guhagarkar.

Nikhil joined the patient organization “Friends of Max”, supporting arm of the Max Foundation in India, in 2013. Since then he has worked selflessly to support GIST patients and to raise awareness for this rare disease in India. Nikhil joined the international GIST and sarcoma community for the first time in 2014. He quickly became a valued member, advocate, but most of all a dear friend to the community.

In 2016, Nikhil was elected into the Board of Directors of SPAEN as the first-ever Board Member from outside of Europe and was re-elected in 2020. His work, his dedication, his opinions and perspectives were highly appreciated by the Board as well as the community.

With the passing of Nikhil, the community loses not only a great and devoted patient advocate, but also a kind and caring person and most of all a close friend!

Our thoughts and prayers go out to his wife and son, to his family and friends.
May he rest in peace.

Appointed board members

Sami Sandakly (patient)
France
Info Sarcomes

Professor Dr. Bernd Kasper
Mannheim, Germany

Chair-elect of the EORTC Soft Tissue and Bone Sarcoma Group

Michaela Geissler

Project Management & Administration

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Kathrin Schuster,

Communications & Project Management

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