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 SPAEN Advocacy Award Titel 2018

Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. The projects that were entered for the "Sarcoma Advocacy in Action Award 2018" once again showed this impressively! All entries were fantastic and the jury had a hard job to decide on the winners. But they did. These are the winners of the "Sarcoma Advocacy in Action Award 2018":

1. Das Lebenshaus, Germany for the pdf "German Sarcoma Conference" (1.07 MB)
2. GIST Support UK/PAWS GIST, UK for the pdf "PAWS-GIST clinic" (815 KB)
3. Patientenplatform Sarcomen, The Netherlands for the pdf "Patient Forum Miner" (606 KB)

 Advocacy in Action 2018 winners

Thanks to all the groups that entered their fantastic work - you can find information about all projects that were entered here:

Thanks also to our jury Barbara Tamagni, Sarah McDonald, Kai Pilgermann, Nikhil Guhagarkar as patient adovcates and Winette van der Graaf, Mikael Eriksson, Robin Jones and Bernd Kasper from the expert community.



Background on the SPAEN Advocacy in Action Award

We were looking for projects, initiatives, campaigns fulfilling the following eligibility criteria:

Participants: All SPAEN member groups
Type of projects:

  Should be sarcoma specific (Soft Tissue, Bone, GIST, Desmoid, Chordoma)

  • For a single entity or for several diseases
  • Already completed or ongoing projects
    (Please: Not just ideas or planned projects!)
Thematic areas:
  •  Patient information & education
  •  Patient support
  •  Improving the quality of life
  •  Social media and digital communications
  •  Generating “real world evidence” (registries, survey, data mining etc.)
  •  Advocacy & lobbying the healthcare system
  •  Being involved or driving sarcoma research