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UK: Desmoid Fibromatosis UK Patients & Caregivers

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Contact Information

https://www.facebook.com/groups/716472531722406/ [Closed group]
Facebook: https://www.facebook.com/groups/716472531722406/Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.


Contact Person

Ola Fagbohun, Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.


Organisation Profile

Currently only a Facebook group with a number of regional offline events, but aiming for small charity status before end of 2018.
Member of Sarcoma UK and Desmoid Tumor Research Foundation (USA)