USA: The National Leiomyosarcoma Foundation (NLMSF)

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NLMSF Logo

 

 

 

 

Contact Information

The National Leimyosarcoma Foundation (NLMSF)
2843 E. Grand River,  Suite 230
East Lansing, MI  48823 - 6722
USA

Tel.: +1 303  783-0924
Fax: +1 303  783-4838
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Web: http://www.nlmsf.org/

 

Contact Person

Annie Achee (President)
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Organisation Profile

The National Leiomyosarcoma Foundation (NLMSF) was founded in 1997 as a resource for patients, families, and caregivers experiencing leiomyosarcoma (LMS) – a type of sarcoma that affects smooth muscle tissue. In addition to the main NLMSF website, the foundation hosts a research focused website and a website for emotional support, called “NLMSF Life Change. ”  NLMSF also hosts a monthly conference call to connect patients and caregivers with others affected by LMS. Launching on January 20th of this year is the NLMSF Patient-Caregiver Advocacy Network, which gives patients the opportunity to provide guidance for LMS patient care and research. In addition, NLMSF launched the 2019 inaugural LMS Research Roundtable and Scientific Think Tank, in partnership with Sarcoma Patients EuroNet (SPAEN), which brings together researchers from across the globe to determine the priorities in LMS research and standardize guidelines for patient care. Learn more about NLMSF and the variety of resources they offer here.