Advocacy in Action Award

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July 2019

SPAEN Advocacy in Action Award 2019

For the third time SPAEN will be calling again for submission of outstanding projects and initiatives for our SPAEN Advocacy in Action Award 2019. The start of the application period will be around mid of August. Submission deadline will be 1st of December. More information is available here.

February 2019

SPAEN Advocacy in Action Award 2018: Winners announcedSPAEN Advocacy Award Titel 2018

Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. The projects that were entered for the "Sarcoma Advocacy in Action Award 2018" once again showed this impressively! All entries were fantastic and the jury had a hard job to decide on the winners. But they did. These are the winners of the "Sarcoma Advocacy in Action Award 2018":

1. Das Lebenshaus, Germany for the pdf "German Sarcoma Conference" (1.07 MB)
2. GIST Support UK/PAWS GIST, UK for the pdf "PAWS-GIST clinic" (815 KB)
3. Patientenplatform Sarcomen, The Netherlands for the pdf "Patient Forum Miner" (606 KB)

 Advocacy in Action 2018 winners


Thanks to all the groups that entered their fantastic work - you can find information about all projects that were entered here:

Thanks also to our jury Barbara Tamagni, Sarah McDonald, Kai Pilgermann, Nikhil Guhagarkar as patient adovcates and Winette van der Graaf, Mikael Eriksson, Robin Jones and Bernd Kasper from the expert community.



February 2018Logo Advocacy in Action Award

1st SPAEN Advocacy in Action Award for best projects in sarcoma patients advocacy was awarded

We are very happy to have received submissions of outstanding projects and initiatives for our SPAEN Advocacy in Action Award 2017.

The best projects have been awarded by a jury of 8 members consisting of patient advocates and experts. Those projects are:

  1. Friends of Max, India: Together We Share and Learn - Ongoing life-long relationship management of GIST patients & caregivers
  2. Polish Sarcoma Patients Association, Poland: ONCORUN - Together for health!
  3. Associazione Paola, Italy: 1. Paper on sarcoma/rare cancer health policies, 2. Sarcoma meeting for healthcare professionals and policy makers, 3. Funding Ewing sarcoma research (travel scholarship 2017/2018), 4. Lobbying in order to relax the rules for the “compassionate use” in rare cancers

Read more here...