UK: “PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)

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Contact Information

“PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)
Pennysfield Barn, Dauntsey,
Chippenham, Wiltshire, SN15 4HL, UK

Telephone Number incl. country code: Patient & Carer Helpline: +44 300 400 0000
Website: www.gistsupportuk.com & www.pawsgistclinic.org

SPAEN Contact:
Jayne Bressington – Vice Chair – This email address is being protected from spambots. You need JavaScript enabled to view it.

 

Organisation Profile

GIST Support UK are a network of patients and carers affected by GIST, sharing experience and offering mutual support. We raise awareness about GIST & represent patient interests at National and International meetings.

Working to support an infrastructure that supports research and improves patient care, we hold meetings for patients to meet each other and GIST specialists, to learn about GIST, treatment options and new clinical trials and we provide educational booklets and information.

We operate a private online patient & carer discussion/question and answer group in addition to Facebook & Twitter communities.

PAWS-GIST is a specialist branch of GIST Support UK which focuses on children, young people and all with wild-type GIST. We are a Clinical Focus Group whose aim is to find a cure for paediatric, adolescent, wild-type and syndromic GIST cancer. Our specialist clinics convene three times each year. For more information please go to www.pawsgistclinic.org.