Learning, teaching, sharing and a great sense of community
Once again, the community of patient advocates for sarcomas, GIST and desmoids have come together for another successful SPAEN Annual Conference from February 1-3, 2019. This year, Greece was the host country, currently establishing a Greek Sarcoma Group and hopefully a patient advocacy group. Dr. Vasilis Ramfidis welcomed all participants on behalf of the Greek expert community with great hospitality and warmth to Greece’s capital Athens.
The three conference days were full of learning about medical topics ranging from pathology to novel therapy options in GIST, sarcomas and desmoids, bone sarcomas and novel developments in radiotherapy and proton beam therapy, among a lot of others.
But also clinical trials and understanding them as well as Quality of Life were huge and widely discussed topics. Furthermore, capacity building about “Working with pharma”, “Data opportunities” or “Social Media” were important parts of the meeting. More to come in our conference report!
Also always worth to be part of such a community is the talk before and after sessions about similar or completely different problems, projects, good or bad experiences and brainstorming new ideas. 55 patient advocates, among them around 15 joining the SPAEN Conference for the first time, 20 experts as well as pharma representatives took this opportunity to talk, discuss and exchange ideas and experiences – a great way to learn from each other and to evolve the sarcoma community.
About the SPAEN Annual Conferences
Since 2010 SPAEN is holding an annual conference bringing together sarcoma groups, experts, pharma and research from all over Europe and around the globe. In the last years a growing number of participants demonstrated the increasing interest in the sarcoma field. Approx. 80 participants from over 25 countries joined the three-day meeting in Athens, Greece.
>> See the presentations folder here
>> See photos here