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Together We Can Make A Difference
For Those Affected By Sarcomas!

Group Profiles

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Please find our member organisations listed below. It gives you a sense of SPAEN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organisations and initiatives we can achieve more.

  1. Australia: Sock it to Sarcoma
  2. Austria: GIST Support Österreich
  3. Belgium: Cum Cura
  4. Bulgaria: GIST and STS Alliance for Patients - Bulgaria
  5. Curacao: Synovial Sarcoma Research Foundation
  6. Finland: Finnish GIST Patient Network
  7. France: Info Sarcomes
  8. France: SOS Desmoide France
  9. Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
  10. Germany: SOS Desmoids
  11. Germany: SMARCB1 e.V.
  12. Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület
  13. India: Friends of Max GIST
  14. India: SPANDAN (part of V Care)
  15. Israel: Israeli GIST Patients Organisation
  16. Italy: A.I.G. Associazione Italiana GIST
  17. Italy: Italian Desmoid Foundation
  18. Italy: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
  19. Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva
  20. Italy: Trust Paola Gonzato-Rete Sarcoma Onlus
  21. Italy: Orchestra per la Vita Onlus
  22. Kenya: Henzo Kenya
  23. Macedonia: GIST Patient Group Macedonia
  24. Netherlands: Patient Platform Sarcomen
  25. Netherlands: Chordoma Foundation Europe
  26. Norway: Sarkomer Norway
  27. Poland: Stow. Pomocy Chorym Na GIST
  28. Poland: Stow. Pomocy Chorym Na Miesaki "SARCOMA"
  29. Romania: HomeCare Association
  30. South America: Alianza GIST
  31. South Africa: Campaigning for Cancer
  32. Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
  33. Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
  34. Sweden: GIST Sverige
  35. Sweden: Sarkomföreningen
  36. Switzerland: Swiss GIST Group
  37. Switzerland: Swiss Sarcoma
  38. Turkey: Genç Birikim Derneği & Youth Accumulation Association
  39. UK: GIST Cancer UK and PAWS GIST
  40. UK: Bone Cancer Research Trust
  41. UK: Guy Francis Bone Cancer Research Fund
  42. UK: Sarcoma UK
  43. UK: Desmoid Fibromatosis UK Patients & Caregivers
  44. USA: Chordoma Foundation
  45. USA: Desmoid Tumour Research Foundation
  46. USA: GSI - GIST Support International
  47. USA: Sarcoma Alliance
  48. USA: The Liddy Shriver Sarcoma Initiative
  49. USA: National Leiomyosarcoma Foundation
  50. USA: The Life Raft Group

Please find here a list of global Sarcoma Advocacy Groups known to us. If you have groups, to be added, please let us know at Diese E-Mail-Adresse ist vor Spambots geschützt! Zur Anzeige muss JavaScript eingeschaltet sein!. Thank you very much!