Please find our member organisations listed below. It gives you a sense of SPAEN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organisations and initiatives we can achieve more.

1. Australia: Sock it to Sarcoma
2. Austria: GIST Support Österreich
3. Bulgaria: GIST and STS Alliance for Patients - Bulgaria
4. Curacao: Synovial Sarcoma Research Foundation
5. Finland: Finnish GIST Patient Network
6. France: Info Sarcomes
7. France: SOS Desmoide France
8. Germany: Das Lebenshaus e.V./House of Life
9. Germany: SOS Desmoids
10. India: Friends of Max GIST
11. India: SPANDAN (part of V Care)
12. Israel: Israeli GIST Patients Organisation
13. Italy: A.I.G. Associazione Italiana GIST
14. Italy: Italian Desmoid Foundation
15. Italy: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
16. Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva
17. Italy: Trust Paola Gonzato-Rete Sarcoma Onlus
18. Italy: Orchestra per la Vita Onlus
19. Kenya: Henzo Kenya
20. Macedonia: GIST Patient Group Macedonia
21. Netherlands: Patient Platform Sarcomen
22. Netherlands: Chordoma Foundation Europe
23. Norway: Sarkomer Norway
24. Poland: Stow. Pomocy Chorym Na GIST
25. Poland: Stow. Pomocy Chorym Na Miesaki "SARCOMA"
26. Romania: HomeCare Association
27. South America: Alianza GIST
28. Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
29. Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
30. Sweden: GIST Sverige
31. Sweden: Sarkomföreningen
32. Switzerland: Swiss GIST Group
33. Switzerland: Swiss Sarcoma
34. Turkey: Genç Birikim Derneği & Youth Accumulation Association
35. UK: GIST Support UK and PAWS GIST
36. UK: Bone Cancer Research Trust
37. UK: Guy Francis Bone Cancer Research Fund
38. UK: Sarcoma UK
39. UK: Desmoid Fibromatosis UK Patients & Caregivers
40. USA: Desmoid Tumour Research Foundation
41. USA: GSI - GIST Support International
42. USA: Sarcoma Alliance
43. USA: The Liddy Shriver Sarcoma Initiative
44. USA: National Leiomyosarcoma Foundation
45. USA: The Life Raft Group

Please find here a list of global Sarcoma Advocacy Groups known to us. If you have groups, to be added, please let us know at Diese E-Mail-Adresse ist vor Spambots geschützt! Zur Anzeige muss JavaScript eingeschaltet sein!. Thank you very much!