Please find our member organisations listed below. It gives you a sense of SPAEN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organisations and initiatives we can achieve more.

1. Australia: Sock it to Sarcoma
2. Austria: GIST Support Österreich
3. Belgium: Cum Cura
4. Bulgaria: GIST and STS Alliance for Patients - Bulgaria
5. Curacao: Synovial Sarcoma Research Foundation
6. Finland: Finnish GIST Patient Network
7. France: Info Sarcomes
8. France: SOS Desmoide France
9. Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
10. Germany: SOS Desmoids
11. Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület
12. India: Friends of Max GIST
13. India: SPANDAN (part of V Care)
14. Israel: Israeli GIST Patients Organisation
15. Italy: A.I.G. Associazione Italiana GIST
16. Italy: Italian Desmoid Foundation
17. Italy: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
18. Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva
19. Italy: Trust Paola Gonzato-Rete Sarcoma Onlus
20. Italy: Orchestra per la Vita Onlus
21. Kenya: Henzo Kenya
22. Macedonia: GIST Patient Group Macedonia
23. Netherlands: Patient Platform Sarcomen
24. Netherlands: Chordoma Foundation Europe
25. Norway: Sarkomer Norway
26. Poland: Stow. Pomocy Chorym Na GIST
27. Poland: Stow. Pomocy Chorym Na Miesaki "SARCOMA"
28. Romania: HomeCare Association
29. South America: Alianza GIST
30. South Africa: Campaigning for Cancer
31. Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
32. Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
33. Sweden: GIST Sverige
34. Sweden: Sarkomföreningen
35. Switzerland: Swiss GIST Group
36. Switzerland: Swiss Sarcoma
37. Turkey: Genç Birikim Derneği & Youth Accumulation Association
38. UK: GIST Support UK and PAWS GIST
39. UK: Bone Cancer Research Trust
40. UK: Guy Francis Bone Cancer Research Fund
41. UK: Sarcoma UK
42. UK: Desmoid Fibromatosis UK Patients & Caregivers
43. USA: Chordoma Foundation
44. USA: Desmoid Tumour Research Foundation
45. USA: GSI - GIST Support International
46. USA: Sarcoma Alliance
47. USA: The Liddy Shriver Sarcoma Initiative
48. USA: National Leiomyosarcoma Foundation
49. USA: The Life Raft Group

Please find here a list of global Sarcoma Advocacy Groups known to us. If you have groups, to be added, please let us know at Diese E-Mail-Adresse ist vor Spambots geschützt! Zur Anzeige muss JavaScript eingeschaltet sein!. Thank you very much!