Please find our member organisations listed below. It gives you a sense of SPAEN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organisations and initiatives we can achieve more.

1. Australia: Sock it to Sarcoma
2. Austria: GIST Support Österreich
3. Belgium: Cum Cura
4. Bulgaria: GIST and STS Alliance for Patients - Bulgaria
5. Curacao: Synovial Sarcoma Research Foundation
6. Finland: Finnish GIST Patient Network
7. France: Info Sarcomes
8. France: SOS Desmoide France
9. Germany: Das Lebenshaus e.V./House of Life
10. Germany: SOS Desmoids
11. India: Friends of Max GIST
12. India: SPANDAN (part of V Care)
13. Israel: Israeli GIST Patients Organisation
14. Italy: A.I.G. Associazione Italiana GIST
15. Italy: Italian Desmoid Foundation
16. Italy: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
17. Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva
18. Italy: Trust Paola Gonzato-Rete Sarcoma Onlus
19. Italy: Orchestra per la Vita Onlus
20. Kenya: Henzo Kenya
21. Macedonia: GIST Patient Group Macedonia
22. Netherlands: Patient Platform Sarcomen
23. Netherlands: Chordoma Foundation Europe
24. Norway: Sarkomer Norway
25. Poland: Stow. Pomocy Chorym Na GIST
26. Poland: Stow. Pomocy Chorym Na Miesaki "SARCOMA"
27. Romania: HomeCare Association
28. South America: Alianza GIST
29. Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
30. Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
31. Sweden: GIST Sverige
32. Sweden: Sarkomföreningen
33. Switzerland: Swiss GIST Group
34. Switzerland: Swiss Sarcoma
35. Turkey: Genç Birikim Derneği & Youth Accumulation Association
36. UK: GIST Support UK and PAWS GIST
37. UK: Bone Cancer Research Trust
38. UK: Guy Francis Bone Cancer Research Fund
39. UK: Sarcoma UK
40. UK: Desmoid Fibromatosis UK Patients & Caregivers
41. USA: Chordoma Foundation
42. USA: Desmoid Tumour Research Foundation
43. USA: GSI - GIST Support International
44. USA: Sarcoma Alliance
45. USA: The Liddy Shriver Sarcoma Initiative
46. USA: National Leiomyosarcoma Foundation
47. USA: The Life Raft Group

Please find here a list of global Sarcoma Advocacy Groups known to us. If you have groups, to be added, please let us know at Diese E-Mail-Adresse ist vor Spambots geschützt! Zur Anzeige muss JavaScript eingeschaltet sein!. Thank you very much!