Please find our member organisations listed below. It gives you a sense of SPAEN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organisations and initiatives we can achieve more.

1. Australia: Sock it to Sarcoma
2. Austria: GIST Support Österreich
3. Belgium: Cum Cura
4. Bulgaria: GIST and STS Alliance for Patients - Bulgaria
5. Curacao: Synovial Sarcoma Research Foundation
6. Finland: Finnish GIST Patient Network
7. France: Info Sarcomes
8. France: SOS Desmoide France
9. Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
10. Germany: SOS Desmoids
11. Germany: SMARCB1 e.V.
12. Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület
13. India: Friends of Max GIST
14. India: SPANDAN (part of V Care)
15. Israel: Israeli GIST Patients Organisation
16. Italy: A.I.G. Associazione Italiana GIST
17. Italy: Italian Desmoid Foundation
18. Italy: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
19. Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva
20. Italy: Trust Paola Gonzato-Rete Sarcoma Onlus
21. Italy: Orchestra per la Vita Onlus
22. Kenya: Henzo Kenya
23. Macedonia: GIST Patient Group Macedonia
24. Netherlands: Patient Platform Sarcomen
25. Netherlands: Chordoma Foundation Europe
26. Norway: Sarkomer Norway
27. Poland: Stow. Pomocy Chorym Na GIST
28. Poland: Stow. Pomocy Chorym Na Miesaki "SARCOMA"
29. Romania: HomeCare Association
30. South America: Alianza GIST
31. South Africa: Campaigning for Cancer
32. Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
33. Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
34. Spain: ASARGA - Associacion Sarcomas of Galicia
35. Sweden: GIST Sverige
36. Sweden: Sarkomföreningen
37. Switzerland: Swiss GIST Group
38. Switzerland: Swiss Sarcoma
39. Turkey: Genç Birikim Derneği & Youth Accumulation Association
40. UK: GIST Cancer UK and PAWS GIST
41. UK: Bone Cancer Research Trust
42. UK: Guy Francis Bone Cancer Research Fund
43. UK: Sarcoma UK
44. UK: Desmoid Fibromatosis UK Patients & Caregivers
45. USA: Chordoma Foundation
46. USA: Chondrosarcoma Foundation
47. USA: Desmoid Tumour Research Foundation
48. USA: GSI - GIST Support International
49. USA: Sarcoma Alliance
50. USA: The Liddy Shriver Sarcoma Initiative
51. USA: LeiomyoSarcoma Support & Direct Research Foundation
52. USA: National Leiomyosarcoma Foundation
53. USA: The Life Raft Group

Please find here a list of global Sarcoma Advocacy Groups known to us. If you have groups, to be added, please let us know at Diese E-Mail-Adresse ist vor Spambots geschützt! Zur Anzeige muss JavaScript eingeschaltet sein!. Thank you very much!