Please find our member organisations listed below. It gives you a sense of SPAEN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organisations and initiatives we can achieve more.

1. Australia: Sock it to Sarcoma
2. Austria: GIST Support Österreich
3. Bulgaria: GIST and STS Alliance for Patients - Bulgaria
4. Curacao: Synovial Sarcoma Research Foundation
5. Finland: Finnish GIST Patient Network
6. France: Info Sarcomes
7. France: SOS Desmoide France
8. Germany: Das Lebenshaus e.V./House of Life
9. Germany: SOS Desmoids
10. India: Friends of Max GIST
11. India: SPANDAN (part of V Care)
12. Israel: Israeli GIST Patients Organisation
13. Italy: A.I.G. Associazione Italiana GIST
14. Italy: Italian Desmoid Foundation
15. Italy: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
16. Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva
17. Italy: Trust Paola Gonzato-Rete Sarcoma Onlus
18. Kenya: Henzo Kenya
19. Macedonia: GIST Patient Group Macedonia
20. Netherlands: Patient Platform Sarcomen
21. Netherlands: Chordoma Foundation Europe
22. Norway: Sarkomer Norway
23. Poland: Stow. Pomocy Chorym Na GIST
24. Poland: Stow. Pomocy Chorym Na Miesaki "SARCOMA"
25. Romania: HomeCare Association
26. South America: Alianza GIST
27. Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
28. Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
29. Sweden: GIST Sverige
30. Sweden: Sarkomföreningen
31. Switzerland: Swiss GIST Group
32. Switzerland: Swiss Sarcoma
33. Turkey: Genç Birikim Derneği & Youth Accumulation Association
34. UK: GIST Support UK and PAWS GIST
35. UK: Bone Cancer Research Trust
36. UK: Guy Francis Bone Cancer Research Fund
37. UK: Sarcoma UK
38. UK: Desmoid Fibromatosis UK Patients & Caregivers
39. USA: Desmoid Tumour Research Foundation
40. USA: GSI - GIST Support International
41. USA: Sarcoma Alliance
42. USA: The Liddy Shriver Sarcoma Initiative
43. USA: National Leiomyosarcoma Foundation
44. USA: The Life Raft Group

Please find here a list of global Sarcoma Advocacy Groups known to us. If you have groups, to be added, please let us know at Diese E-Mail-Adresse ist vor Spambots geschützt! Zur Anzeige muss JavaScript eingeschaltet sein!. Thank you very much!