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Please find our member organisations listed below. It gives you a sense of SPAEN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organisations and initiatives we can achieve more.
- Australia: Sock it to Sarcoma
- Austria: GIST Support Österreich
- Belgium: Cum Cura
- Bulgaria: GIST and STS Alliance for Patients - Bulgaria
- Curacao: Synovial Sarcoma Research Foundation
- Finland: Finnish GIST Patient Network
- France: Info Sarcomes
- France: SOS Desmoide France
- Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
- Germany: SOS Desmoids
- Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület
- India: Friends of Max GIST
- India: SPANDAN (part of V Care)
- Israel: Israeli GIST Patients Organisation
- Italy: A.I.G. Associazione Italiana GIST
- Italy: Italian Desmoid Foundation
- Italy: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
- Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva
- Italy: Trust Paola Gonzato-Rete Sarcoma Onlus
- Italy: Orchestra per la Vita Onlus
- Kenya: Henzo Kenya
- Macedonia: GIST Patient Group Macedonia
- Netherlands: Patient Platform Sarcomen
- Netherlands: Chordoma Foundation Europe
- Norway: Sarkomer Norway
- Poland: Stow. Pomocy Chorym Na GIST
- Poland: Stow. Pomocy Chorym Na Miesaki "SARCOMA"
- Romania: HomeCare Association
- South America: Alianza GIST
- South Africa: Campaigning for Cancer
- Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
- Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
- Sweden: GIST Sverige
- Sweden: Sarkomföreningen
- Switzerland: Swiss GIST Group
- Switzerland: Swiss Sarcoma
- Turkey: Genç Birikim Derneği & Youth Accumulation Association
- UK: GIST Cancer UK and PAWS GIST
- UK: Bone Cancer Research Trust
- UK: Guy Francis Bone Cancer Research Fund
- UK: Sarcoma UK
- UK: Desmoid Fibromatosis UK Patients & Caregivers
- USA: Chordoma Foundation
- USA: Desmoid Tumour Research Foundation
- USA: GSI - GIST Support International
- USA: Sarcoma Alliance
- USA: The Liddy Shriver Sarcoma Initiative
- USA: National Leiomyosarcoma Foundation
- USA: The Life Raft Group
Please find here a list of global Sarcoma Advocacy Groups known to us. If you have groups, to be added, please let us know at Diese E-Mail-Adresse ist vor Spambots geschützt! Zur Anzeige muss JavaScript eingeschaltet sein!. Thank you very much!