SPAEN welcomes every Sarcoma, GIST or Desmoid Patient Group/Organisation in Europe as Full Member. Full Members are entitled to vote at the Annual General Assembly. All other PAGs from outside Europe are welcome to join SPAEN as Associate Members.
Among the benefits of membership are: information exchange with other members, receiving SPAEN Newsletters and Briefings, an invitation to SPAEN’s annual meeting, mention of your organisation on our website, and finally, as part of a united international sarcoma community we all have a better chance to have our voices heard.
SPAEN Full Members are currently (as of 01.02.2014):
- Bulgaria: GIST Alliance for Patients Bulgaria
- Finland: Finnish GIST Patient Network
- France: A.F.P.G. "Ensemble contre le GIST"
- France: Info Sarcomes
- France: SOS Desmoide France
- Germany: Das Lebenshaus e.V./House of Life
- Germany: SOS Desmoids
- Italy: A.I.G. Associazione Italiana GIST
- Italy: Le Ali Onlus
- Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva
- Italy: Associazione Paola per i Tumori Muscoloscheletrici. Onlus
- Macedonia: Patient Advocate from Macedonia
- Netherlands: Contactgroep GIST
- Netherlands: Stichting Sarcoma Nederlands
- Netherlands: Chordoma Foundation Europe
- Norway: Sarkomer
- Poland: Stow. Pomocy Chorym Na GIST
- Poland: Stow. Pomocy Chorym Na Miesaki "Sarcoma"
- Romania: Romanian GIST-Network
- Sweden: GIST Sverige
- Switzerland: GIST Gruppe Schweiz
- UK: GIST Support UK
- UK: Bone Cancer Research Trust
- UK: Guy Francis Bone Cancer Research Fund
- UK: Sarcoma UK
SPAEN Associate Members (as of 4.12.2012):
- Turkey: Genç Birikim Derneği Youth Accumulation Association (Associate Member)
- USA: GSI - GIST Support International
- USA: Sarcoma Alliance
- USA: The Liddy Shriver Sarcoma Initiative