SPAEN welcomes every Sarcoma, GIST or Desmoid Patient Group/Organisation in Europe as Full Member. Full Members are entitled to vote at the Annual General Assembly. All other PAGs from outside Europe are welcome to join SPAEN as Associate Members.

Among the benefits of membership are: information exchange with other members, receiving SPAEN Newsletters and Briefings, an invitation to SPAEN’s annual meeting, mention of  your organisation on our website, and finally, as part of  a united international sarcoma community we all have a better chance to have our voices heard.

SPAEN Full Members are currently (as of 04.11.2012):

1. Bulgaria: GIST Alliance for Patients Bulgaria
2. Finland: Finnish GIST Patient Network
3. France: A.F.P.G. "Ensemble contre le GIST"
4. France: Info Sarcomes
5. France: SOS Desmoide France
6. Germany: Das Lebenshaus e.V./House of Life
7. Germany: SOS Desmoids
8. Italy: A.I.G. Associazione Italiana GIST
9. Italy: Le Ali Onlus
10. Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva
11. Italy: Associazione Paola per i Tumori Muscoloscheletrici. Onlus
12. Macedonia: Patient Advocate from Macedonia
13. Netherlands: Contactgroep GIST
14. Netherlands: Stichting Sarcoma Nederlands
15. Netherlands: Chordoma Foundation Europe
16. Poland: Stow. Pomocy Chorym Na GIST
17. Poland: Stow. Pomocy Chorym Na Miesaki "Sarcoma"
18. Romania: Romanian GIST-Network
19. Sweden: GIST Sverige
20. Switzerland: GIST Gruppe Schweiz
21. UK: GIST Support UK
22. UK: Guy Francis Bone Cancer Research Fund
23. UK: Sarcoma UK

 

SPAEN Associate Members (as of 4.12.2012):

1. Turkey: Genç Birikim Derneği & Youth Accumulation Association (Associate Member)
2. USA: GSI - GIST Support International
3. USA: Sarcoma Alliance
4. USA: The Liddy Shriver Sarcoma Initiative
   

Here you can find the SPAEN Membership Application Form. Please complete the form and send it via email to This e-mail address is being protected from spambots. You need JavaScript enabled to view it or via fax to +49 89 62836808