AEAS (Spanish Association for Sarcoma´s Affected) and Mª Paz Jiménez Casado Foundation, once again join its efforts to keep fighting against this rare type of cancer, organizing the 2nd Sarcoma National Day, that will be held in Madrid at 20th of September, endorsed by GEPAC, GEIS, SEMERGEN and COAM.
30 July 2014 - The oncology compound Stivarga® (Regorafenib) from Bayer has been approved by the European Commission (EC) for the treatment of adult patients with unresectable or metastatic GIST (gastrointestinal stromal tumours) who progressed on or are intolerant to prior treatment with Imatinib (Glivec®) and Sunitinib (Sutent®).
Further to the launch of the Paediatric, Adolescent, Wild-type and Syndromic GIST clinic at Addenbrookes Hospital Cambridge UK, earlier this year the second clinic happened in early August. The second clinic involved seven female patients, x5 in the range 16 -25 and x2 aged 25 plus, from a variety of UK locations.
SPAEN is delighted to provide a comprehensive report of the ASCO 2014 medical highlights in GIST and Sarcomas from Dr Axel Le Cesne, Gustave Roussy Institute, Villejuif (France). Sarcomas and GIST were presented at five plenary and parallel sessions. These were rich in terms of innovation and therapeutic concepts, reporting study results that may have an impact on our daily practice, whether in GIST or sarcomas.
Paralympic champion Richard Whitehead MBE launches Sarcoma Awareness Week by calling on Britons to seek immediate medical advice if they find a lump larger than a golf ball. The campaign marks the beginning of annual Sarcoma Awareness Week (23-29 June) and calls on anyone who discovers a lump on their body larger than a golf ball (roughly 5cm across) to seek immediate medical advice.
New Horizons GIST 2014: GIST-Patient Group Leaders from around the globe - welcomed 2014 in Switzerland…
Eighty six delegates from around the world attended the annual conference New Horizons GIST held from May 14 – 17, 2014 in Rüschlikon/Switzerland. This year, the Swiss GIST-Patient Group, represented by Helga Meier and Martin Wettstein, hosted this annual conference for GIST-Patient Group Leaders. The Swiss organizing team was supported by Das Lebenshaus e.V. in Germany and Sarcoma Patients EuroNet e.V.
SPAEN is collaborating in the EuroEwing project that involves 20 European partners in Europe. Ewing Sarcomas (ES) are rare bone cancers affecting young people in particular. The goal of the EuroEwing project is to improve the treatment outcomes for patients through a new and unique level of European collaboration, involving the most active clinicians and scientists in Europe dedicated to improving survival from Ewing Sarcoma. SPAEN's aim at the moment is to identify all bone sarcoma patient organisations that work in Europe and to create an online database mapping the patient organizations collected. The database aims at providing all sufferers of bone sarcoma with an accessible and centralized tool for locating support and information.
Launch of the European Cancer Patient’s Bill of Rights: charting a course for equitable care for the European Citizen
Today, which marks World Cancer Day 2014, a unique group of patient advocacy organisations, healthcare leaders and Members of the European Parliament against Cancer (MAC) will come togetherto launch the brandnew European Cancer Patient’s Bill of Rights in the European Parliament in Strasbourg. SPAEN, being one of the ECC Partners, welcomes the launch of the Cancer Patient's Bill of Rights which is the result of over two years of work and widespread engagement led by the European Cancer Concord (ECC) and is a call to action to address the significant disparities that exist for European cancer patients today.