USA: GSI - GIST Support International

Contact Information

GIST Support International (GSI)
12 Bomaca Drive
Doylestown, PA 18901

Tel.: +1 215- 340-9374
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Web: http://www.gistsupport.org/

 

Contact Person

Barbara Doré (Board Member)
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Julie Royster (Science Co-ordinator)
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Organisation Profile

GIST Support International (GSI) is an all-volunteer group of patients with gastrointestinal stromal tumor (GIST), family members, and interested professionals.  Our e-mail listserv includes over 1400 subscribers who form an online community to share information about GIST treatment and to support each other in living with GIST.

VISION

  • To be recognized as the premier GIST patient group: independent, unbiased and providing a respected international voice for GIST patients.
  • To create a portal that GIST patients, caregivers, medical professionals, media and others think of as the FIRST place to go for complete, accurate, up-to-date information on Gastrointestinal Stromal Tumors.
  • To continue to provide an online community where both patients and caregivers can interact and feel comfortable sharing thoughts, ideas and experiences while working through the emotional roller-coaster of living with cancer.
  • To produce top-quality educational products about GIST in order to enable all patients to become their own best advocates.
  • To maintain an educational, informative website with accurate information about practical issues as well as medical aspects of GIST and its treatment.
  • To translate key sections of our website for international GIST patients.
  • To reach out internationally to all GIST patients who do not have access to the internet.
  • To remain focused solely on GIST patients.

 

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