Sarcomas are rare. It is therefore very important to find physicians who have experience with this disease. These are the criteria a sarcoma centre should fulfill:
- A multidisciplinary sarcoma medical team consisting of all specialties including surgical (orthopaedic, general, reconstructive), medical oncologists, radiation oncologists (radiotherapy), diagnostic radiologists, pathologists, oncology nurses and rehabilitation services.
- Access to thoracic surgical specialists (to treat lung metastases), intervention radiology (e.g. RFA), and genomic testing. Referral networks giving patients access to ILP (isolated limb perfusion) and proton beam therapy.
- At least one group member who belongs to a sarcoma-oriented medical organization, such as the Connective Tissue Oncology Society (CTOS).
- Sarcoma conferences (e.g. Tumor Board), where sarcoma group members meet regularly to discuss patient care issues.
- At least 50 sarcoma patients seen per year.
- MRI imaging available; PET scans desired.
- Patient enrollment in clinical trials.
- Publications concerning sarcoma in peer-reviewed journals.
- Strong support personnel such as social workers, psychologists and psychiatrists.
- Sarcoma support group desired.
Please contact your national sarcoma patient organization for information about sarcoma centers in your country.